Founder · Advocate · Author
About
Adrian Adair
He did not set out to create an organization. He set out to respond to something that felt invisible.
In his
own words
own words
Congenital heart disease affects millions of children. It is underfunded, underrepresented, and largely invisible to the public. Someone has to look at that and say: not on my watch.
Adrian Adair is a public advocate for children born with congenital heart disease and the founder of Heartbeat Forward, a 501(c)(3) nonprofit dedicated to supporting children with CHD and their families through compassionate resources, emotional support, and thoughtfully designed care initiatives.
Congenital heart disease is the most common birth defect worldwide. It affects millions of families, yet it remains underrepresented in public conversation and philanthropic funding.
Behind every statistic is a child facing surgery. Behind every surgery is a family navigating fear, strength, hope, and uncertainty all at once.
Heartbeat Forward began with comfort. But comfort was never the end goal.
The Vision
Adrian's long-term vision is clear and unwavering: to build the awareness, partnerships, and institutional capacity necessary to help fund life-saving heart surgeries for children with congenital heart disease.
No family should ever face the unbearable decision between financial devastation and their child's survival.
He understands that meaningful impact requires infrastructure. It requires trust. It requires sustained public engagement. It requires positioning congenital heart disease proportionately within the broader public health landscape.
The Work
Through advocacy essays, educational guides, and strategic public awareness initiatives, Adrian is laying the groundwork for a future in which Heartbeat Forward can expand beyond support resources and into direct surgical assistance.
This is not a short-term project. It is a lifelong commitment.
Awareness precedes funding. Funding precedes access. If people understand the scale of congenital heart disease, they will help solve it.
And if enough people stand together, surgeries can be funded, systems can improve, and children can be given the chance to grow up.
The Mission
Simple in principle.
Profound in scope.
To ensure that congenital heart disease is no longer invisible — and that no child is denied care because of cost.
01
Awareness
Public education, storytelling, and institutional collaboration to bring CHD into the conversation it deserves.
02
Support
Care packages delivered to children in cardiac units. Resources built for every stage of the CHD journey.
03
Funding
Working toward the capacity to fund life-saving heart surgeries for children who cannot afford them.
Stand with the
quiet majority.
Every child with CHD deserves to be seen. Every family deserves to know they are not alone.