Author  ·  Advocate  ·  Founder Adrian Adair Founder, Heartbeat Forward  ·  Los Angeles A public advocate for congenital heart disease awareness, founder of Heartbeat Forward, and author of two books written directly for the CHD community. His work lives at the intersection of storytelling, advocacy, and the belief that visibility saves lives. He did not come to this cause through personal pain. He came to it through something harder to explain. A moral weight he could not set down.
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Adrian Adair, founder of Heartbeat Forward and congenital heart disease advocate Adrian Adair
“ “I didn’t come to this cause through personal pain. I came to it through something harder to explain. A moral weight I could not set down.” Adrian Adair  ·  In his own words
His Story The work he is building toward Congenital heart disease affects one in every one hundred children born. It is the most common birth defect in the world. Adrian Adair has made it his life’s work to ensure that changes.
Adrian Adair is a public advocate for children born with congenital heart disease and the founder of Heartbeat Forward, a federally recognized 501(c)(3) nonprofit dedicated to supporting children with CHD and their families through compassionate resources, emotional support, and thoughtfully designed care initiatives. He set out to respond to something that felt invisible. Congenital heart disease is the most common birth defect worldwide. It affects millions of families, yet it remains underrepresented in public conversation and philanthropic funding. Behind every statistic is a child facing surgery. Behind every surgery is a family navigating fear, strength, hope, and uncertainty all at once. Heartbeat Forward began with comfort. But comfort was never the end goal. Adrian’s long-term vision is clear and unwavering: to build the awareness, partnerships, and institutional capacity necessary to help fund life-saving heart surgeries for children with congenital heart disease. No family should ever face the unbearable decision between financial devastation and their child’s survival. He understands that meaningful impact requires infrastructure. It requires trust. It requires sustained public engagement. Through advocacy essays, educational guides, two published books, and strategic public awareness initiatives, Adrian is laying the groundwork for a future in which Heartbeat Forward can expand beyond support resources and into direct surgical assistance. This is not a short-term project. It is a lifelong commitment. Adrian approaches his work with the belief that awareness precedes funding, and funding precedes access. If people understand the scale of congenital heart disease, they will help solve it.
What He Brings Advocate. Author. Founder.
◌ Founder, Heartbeat Forward A federally recognized 501(c)(3) nonprofit delivering care packages to children in cardiac units, producing advocacy resources, and building toward the funding of life-saving CHD surgeries.
◌ Published Author Author of two books under the Teneritas imprint written directly for the CHD community. Letters to the Waiting Room and The Quiet Majority speak to the families, caregivers, and survivors medicine cannot fully reach.
◌ Public Advocate Through essays, educational guides, media, and speaking, Adrian works to bring congenital heart disease into the national conversation it has long deserved. Advocacy for one in every one hundred children born.
◌ Podcast Host Creator and host of Small Hearts, Loud Voices, a podcast dedicated to CHD awareness, family stories, and the call to action that every episode carries: because every small heart deserves a loud voice.
◌ CHD Resource Builder Creator of an extensive library of free educational guides covering diagnosis, surgery, recovery, sibling support, mental health, financial navigation, and more. Built for the families who need them most.
◌ Long-Term Vision His mission is simple in principle and profound in scope: to ensure that congenital heart disease is no longer invisible, and that no child is ever denied care because of cost.
Published Works Books written for the CHD community
Letters to the Waiting Room by Adrian Adair
New  ·  2026 Letters to the Waiting Room For Every Family Touched by Congenital Heart Disease Fourteen letters addressed to the specific people who orbit congenital heart disease. The parent in the minutes after the diagnosis. The mother the night before surgery. The sibling who learned to need less. The adult survivor the week before the appointment. The family who did not get the outcome they were hoping for.
Get on Amazon  → Learn more  →
The Quiet Majority by Adrian Adair
Available Now The Quiet Majority Why Congenital Heart Disease Deserves to Be Seen A call to visibility for the most common birth defect in the world. One in one hundred children. Families carrying something enormous, mostly in silence, mostly without the national attention their numbers deserve. This book makes the case plainly and without apology: congenital heart disease deserves to be seen.
Get on Amazon  → Learn more  →
His Mission To ensure that congenital heart disease is no longer invisible and that no child is ever denied care because of cost.
Visit Heartbeat Forward → The Long-Term Vision →
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Adrian Adair
About Adrian
The Quiet Majority
Letters to the waiting room
Heartbeat Forward
The Long-Term Vision
Advocacy
Congenital Heart Disease Diagnosis Guide
The First 90 Days Congenital Heart Disease Guide
Heart Surgery Guide
Parent Mental Health Guide
Financial & Insurance Guide
Recovery After Heart Surgery
Feeding & Nutrition Guide
Sibling Support Guide
School & Educator Support Guide
Little Hearts, Big Questions Guide
Big Hearts, Bigger World Guide
Growing Into It Guide
Impact
Podcast
What the Colors Sing
FAQ
Press Kit
Contact
Adrian Adair
About Adrian
The Quiet Majority
Letters to the waiting room
Heartbeat Forward
The Long-Term Vision
Advocacy
Congenital Heart Disease Diagnosis Guide
The First 90 Days Congenital Heart Disease Guide
Heart Surgery Guide
Parent Mental Health Guide
Financial & Insurance Guide
Recovery After Heart Surgery
Feeding & Nutrition Guide
Sibling Support Guide
School & Educator Support Guide
Little Hearts, Big Questions Guide
Big Hearts, Bigger World Guide
Growing Into It Guide
Impact
Podcast
What the Colors Sing
FAQ
Press Kit
Contact
About Adrian
Folder: Books
Back
The Quiet Majority
Letters to the waiting room
Heartbeat Forward
The Long-Term Vision
Advocacy
Folder: Resources & Impact
Back
Congenital Heart Disease Diagnosis Guide
The First 90 Days Congenital Heart Disease Guide
Heart Surgery Guide
Parent Mental Health Guide
Financial & Insurance Guide
Recovery After Heart Surgery
Feeding & Nutrition Guide
Sibling Support Guide
School & Educator Support Guide
Little Hearts, Big Questions Guide
Big Hearts, Bigger World Guide
Growing Into It Guide
Impact
Podcast
What the Colors Sing
FAQ
Press Kit
Contact